My So-Called Lungs

Radio Diaries : My So-Called Lungs Image
Radio Diaries : My So-Called Lungs Image

My So-Called Lungs

WBEZ brings you fact-based news and information. Sign up for our newsletters to stay up to date on the stories that matter.

Laura Rothenberg spent most of her life knowing she was going to die young.

She had cystic fibrosis, a genetic disorder that affects the lungs. When she was born, the life expectancy for people with CF was around 18 years. (It’s more than double that now.) Laura liked to say she went through her mid-life crisis when she was a teenager.

I met Laura when she was 19. I gave her a tape recorder. And for two years, she kept an audio diary of her battle with cystic fibrosis and her attempts to live a normal life - with lungs that often betrayed her.