Sickle cell disease affects about 100,000 Americans — most of whom are black. Patients and their families say the search for treatments is slow, underfunded and ineffective. For the first time in decades, the FDA approved a new sickle cell drug, so why aren’t things getting better? | Want to support 1A? Subscribe to our podcast and give to your local public radio station at donate.npr.org/1A. Email the show at 1a@wamu.org.